iNSider - A kidney tracking tool

An online kidney tracking tool for people with nephrotic syndrome, and their families, to learn more about nephrotic syndrome.

iNSider By University of Michigan 
  Features
  • Online tracking tool
  • Education and information
    (about nephrotic syndrome)
  • Patient stories
Clinical review
User reviews

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Available from Website            
Cost Free

What does the tool do?

This online tool is an interactive way to track your nephrotic syndrome journey from first symptoms and diagnosis to treatment.  Presented as a map, with a bicycle showing you where you are in the journey, you can plot your journey. On the map, tree grove icons have a specific name and clicking on it gives more information relating to that topic such as biopsy, treatment, etc. Guide post icons offer basic information about that stage of the journey such as first symptoms, diagnosis, etc. 
The tool also allows you to record questions for your health care team, record your current treatments, invite a health care provider to participate in Insider and view readings suggested by your provider. 
For a more information see the NephCure website  or for a more detailed review, see Reviews

PROS CONS 

✔ Input from renal specialists, patients and parents of patients.

✔ Initial health screening and health literacy questionnaire.

✔ Extensive accurate information about nephrotic syndrome covering symptoms, biopsy, diagnosis, medication, lifestyle, and monitoring. 

✔ Compile a question list for your doctor 

✘ No mobile app available (web only), and it is not optimised for mobile browser viewing either.

✘ Security certificate was invalid during testing and so the connection was not secure.

✘ 
No section for tracking results and measurements.

✘ Current therapies and medication page is very basic.

✘ No videos

 

Privacy and security

The tool has a privacy policy outlining the information collected and how it is managed. Read more about things you can do to improve your safety and security when using apps.

Review details

Date of review: March 2019
Platform reviewed: Website (online  tool)

Learn more

  1. Beanlands H, Maione M, Poulton C, et al. Learning to live with nephrotic syndrome: experiences of adult patients and parents of children with nephrotic syndrome. Nephrol Dial Transplant. 2017 Jan 1;32(suppl_1):i98-i105.