An app developed by the Epilepsy Society, UK for caregivers and people with epilepsy wanting to keep track of their seizures and medication.
What does the app do?
This app provides users with information about epilepsy, how to manage it, anti-epileptic medication and what to do if someone has an epileptic fit. Users can also track details of their seizures (such as duration, seizure type, medication taken) and record information about their medications and set up reminders for taking them. The app allows users to share their health information with friends, family or health professionals.
For the complete app description, go to Google Play (android) or iTunes (apple).
✔ Home screen has functions of the app organised into categories.
✔ Drop-down lists for seizure type and medications taken are customisable.
✔ Has links to Epilepsy Society for more in-depth information if required.
Includes first aid education component.
✔ The first aid instructions and step-by-step recovery guide are clear and helpful.
✘ The seizure tracking and medication tracking features are not immediately obvious — appears hidden towards the bottom of the screen.
✘ Information section states that people should record details about what happens before, during and after the seizure but the tracking feature of the app doesn’t prompt users to capture this information.
✘ Hard to search for medication when adding to list; lacks medication reminders
✘ App is UK-based so some information such as emergency phone numbers and some medication names are not relevant to NZ users.
✘ Seizure duration doesn’t record seconds, only minutes and hours.
✘ Date of birth calendar is not easy to use
✘ Lacks data visualisation or analysis (such as trends, or seizure activities before and after medication changes) at all, the reports are simply a list of the logged seizures.
Privacy and security
Date of review: August 2017
Platform reviewed: Android
Download size: 20.18 MB
The following articles are about apps for epilepsy
- Pandher PS, Bhullar KK. Smartphone applications for seizure management. Health Informatics J. 2016 Jun;22(2):209-20.
Reviewer: Jeremy Steinberg, GP Registrar, RNZCGP
Date of review: December 2017
Comments: "This app is useful for people with epilepsy and their caregivers. Users can log seizures, share reports, and learn more about epilepsy. The app has good information and videos about epilepsy, however it is poorly integrated with most of it is not being within the app, but just links to the Epilepsy Society website. In addition some of the links are dead. The app does not sync between devices (such as if you change phones or for sharing with caregivers) and there is no data visualisation or analysis (such as trends, or seizure activities before and after medication changes) - the reports are simply a list of the logged seizures. Overall, this is a very basic seizure diary with a lot of room for improvement. There is no large advantage with this app over pen and paper. There are better apps available."
Safety concerns: None
New Zealand relevance: "Some of the medication brand names are different. There are different requirements to request a specific brand. To get the same brand the doctor needs to not only write the brand name on the prescription but also write “generic substitution not permitted.” Alternatively, the patient can ask the pharmacist for a specific brand.Obtaining a specific brand, if not subsidised and incurs an extra cost. I think there is an overemphasis in the information on the importance of obtaining the same brand of anti-epilepsy medication continually. The evidence is actually mixed as to whether substitution with a different brand (but same generic) has an impact on seizure control. In New Zealand subsidised brands often change, and generics must pass through the regulatory organisation Medsafe, ensuring that they are bioequivalent. However, continuing the same brand is certainly important in some people with epilepsy."