Keeping a record of your seizures and tracking your anti-epileptic medication can be helpful in managing your epilepsy. This can be done in many ways such as keeping a paper diary, a computer-based diary and marking the calendar or, more recently with the use of seizure-tracking apps on mobile phones.
The tool you choose should be easily accessible so that you can use it on a regular basis, and one that you can easily share with your health care provider.
|App name||App features||Clinical score|
|Epilepsy Journal app
|Epilepsy Tool Kit app
Tips on using your seizure diary
- Ask your doctor or nurse what information is most important for you to track, what would help your health care team and what information do you need?
- When you change medicines, make sure you write down when you do this.
- It is also helpful to write down when you use an ‘as needed’ medicine or treatment and any effect it has, so you can see if it worked as expected.
- To track any triggers or patterns, decide what you are interested in finding out more about and write down when the trigger or pattern occurs.
- To monitor side effects of medicines or changes in your mood, write down if these happen and when they occur, such as after which medicine, and the time of day.
Read more on self-care you can do if you have epilepsy.
The following references relate to articles about apps for epilepsy
- Pandher PS, Bhullar KK. Smartphone applications for seizure management. Health Informatics J. 2016 Jun;22(2):209-20.